We will never sell or share your data with someone else for them to use for their own purposes.
We keep this policy under review and it will be updated from time to time.
Who we are
We, Leuka, are a small, specialist cancer charity. We fund research in order to create a better future for leukaemia and blood cancer patients; we aim to turn this research into new and improved treatments as quickly as possible, so that patients can live better, longer lives.
What personal data we collect and why
Depending on the permission you have given us, we will process your personal information for the following uses:
- To provide you with the services or information you have asked for
- To process your donation or support your fundraising, including processing Gift Aid
- To comply with applicable laws and regulations, such as HMRC guidelines for processing Gift Aid
- For Leuka’s internal administrative purposes, including to administer any funding applications received
- To provide you with information about us and our events, products or services that we provide or provide access to
- To ensure that content from our site is presented in the most effective manner for you and for your computer.
We may collect the following personal data:
- Your name, address, email address and other contact information (including details of your social media accounts) if provided by you
- Records of your correspondence with us, how and when you have contacted us
- Financial information you enter into our website (i.e. through the donation form)
How we collect this information about you
Information you give us
We may directly collect information from you in the following ways:
- Via forms on our website
- Through website cookies
- By email or phone
- At in-person events
Information we receive from other sources
We may indirectly collect information from you in the following ways:
- When you give your permission to independent event organisers, such as Run Britain, the London Marathon or online fundraising sites like JustGiving, to release your details to us. There will be a clear opt-in on these external sites, which will allow them to pass your details on to us. These external sites will also have their own privacy policies you may want to read
- We also want to not only meet, but deepen our connection with, individuals and organisations who share our passion. We are committed to nurturing collaborative relationships with donors, prospective donors and others so we can do more for those who suffer with leukaemia. To enable us to find and connect with people who share our passion and ability to support us, we may also use the information you provide to us in combination with publicly available information.
How we use your information for marketing purposes
Depending on the consent you have given us, we will use your data to send you updates via email phone, post, and/or social media.
We aim to use your data to contact you about information that is relevant to your interests. For example, an interested runner may receive different communications than a volunteer who is not interested in running events.
Whatever the topic, it will always be with your consent.
How we use your information
Whilst generally we will seek consent at the point of collecting your data, in some cases we may process data without consent but only when we are legally allowed to do so, and where it is in our legitimate interests. We will always respect your rights in these matters.
You always have control over how you would like to hear from us. If at any time you do not wish to receive further information about us and our services, or you wish to change your contact details or preferences, please do contact us at firstname.lastname@example.org. You can also write to us at 52 Portland Place, London, W1B 1NH, or call the office on 020 7299 0722.
If you request to receive no further contact from us, we need to keep some basic information in order to avoid sending you unwanted materials in the future, and to ensure that we do not accidentally store details for the same person multiple times.
How long we keep your data for
We will only keep your information for as long as we need it in order to provide you with the services or information you have required, to administer your relationship with us, to comply with the law, or to ensure we do not communicate with people that have asked us not to. When we no longer need this information we will dispose of it securely.
Where we store your personal data
All information you provide to us is stored on our secure servers in the UK. Most payment transactions are completed using secure online methods. On a rare occasion when you directly provide us with the payment details we delete the details immediately after processing.
Unfortunately, the transmission of information via the internet is not completely secure. Although we will do our best to protect your personal data, we cannot guarantee the security of your data transmitted to our site; any transmission is at your own risk. Once we have received your information, we will use strict procedures and security features to try to prevent unauthorised access.
Who has access to your information
We may allow our staff, consultants or other external providers acting on our behalf to access and use your information for the purposes for which you have provided it to us. We only work with suppliers we trust and they are only allowed to use the data to process on our behalf and never for their own purposes.
We will only share your sensitive information with third parties where it is directly relevant to the services you have requested. We make sure that your data is treated with the same level of care as if we were handling it directly.
We may disclose your personal information to third parties if we are under a duty to disclose or share your personal data in order to comply with any legal obligation, or in order to enforce or apply any agreements, or to protect the rights, property or safety of Leuka, or others.
We understand that privacy and data are sensitive and important. You have a number of rights in relation to your data and these are:
- The right of access: you have the right to access the data and information we hold about you. Please see below for details on how request this information
- The right to rectification: we want to make sure that your personal information is accurate and up to date. You may ask us to correct or remove information you think is inaccurate by contacting us using the contact details below
- The right to erasure: you can request that we delete the information we hold on you. If this is because you no longer want to hear from us then we will keep some basic information to ensure we don’t contact you again in the future. If we completely erase your records then we wouldn’t be able to ensure we don’t contact you again in the future
- The right to restrict processing: you can let us know how you want us to use your data and is one of the reasons we operate an opt in communication model so you can choose how and what we contact you about
- The right to data portability: you have the right to request your data be provided in an easy to use format to another supplier
- The right to object: you can opt out of hearing from us at any point by contacting us using the details below
- Rights in relation to automated decision making and profiling: you have a right to access the personal information we hold about you and in certain circumstances to be provided with a copy of that information (this is know as a subject access request). You can request this by email email@example.com or by writing to us at: 52 Portland Place, London, W1B 1NH.
If you are unhappy with the way in which your personal data has been handled please let us know by contacting us at firstname.lastname@example.org or by writing to us at: 52 Portland Place, London, W1B 1NH.
If you are not satisfied with our response you are entitled to make a complaint to the Information Commissioner’s Office.
What are cookies?
Cookies are text files containing small amounts of information that are downloaded to your computer or mobile device when you visit a website or use a mobile application. They provide information to the owners of the website so they can ensure it works well, and provides you with the information you need.
Here are the most common types of cookies:
Session cookies – these are temporary files, which are erased when you close your browser. When you restart your browser and go back to the site that created the cookie, the website will not recognise you. Each time you return to a website with session cookies, a new one will be generated, which will store your browsing information and will be active until you leave the site and close your browser.
Persistent cookies – these files stay in one of your browser's subfolders until you delete them manually or your browser deletes them based on the duration period contained within the persistent cookie's file.
First Party Cookies – these are cookies that are served directly by a website to your computer. They are most often used to recognise your computer when it revisits that site and to remember your preferences as you browse.
Third-party cookies – these are most generally used for advertising. By adding tags to a page, advertisers can track a user or their device across different websites. That helps build a profile of the user based on their habits, so messages can be better targeted to their interests.
We use First Party and Third Party cookies on our site.
We use Google Analytics to help us understand how our visitors use this website, which helps us to ensure we are meeting your needs and to make improvements.
We use the Facebook Pixel, a tracking tool that identifies actions taken on our website and attributes those actions to Facebook Users. A user’s data beyond those actions is not saved or shared, and data collected via the Facebook Pixel does not allow advertisers (i.e. Leuka) to directly identify users and their accounts.
When we email you we may use a tracking pixel in the links of the email you receive. As before, this does not collect directly identifying information from you, but lets us know how many people in total have opened or clicked through to a link on our website from the email. This enables us to understand what topics our supporters are most interested in hearing about.
Changing your browser settings
To change your browser’s cookie settings, click the ‘Help’ menu in your browser toolbar. Here is a guide to changing cookie settings in either Internet Explorer, Chrome, Firefox or Safari.